Care of the Medically Complex Child
What do I know about caring for a medically complex child? Do I have any insight or wisdom to offer to a room full of physicians? Well, I am not an expert in any field of medicine, but I hope I did our community proud by sharing the journey our family has traveled over the last 25 years. The invitation to speak came from the CHRISTUS Health, Texas A&M University College of Medicine Santa Rosa Family Medicine Residency Program team. I felt nervous and honored at the same time
“He doesn’t belong here!”
I love the feeling of belonging — the rich feeling of being seen and accepted. I love being around my people, whether they are defined by age, diversity or shared interests. Most of us have certain groups of people that make us feel like we can truly be ourselves with them. But I will never forget the time a woman expressed to me that Robert didn’t belong in a place where she was privileged to be. It cut me. I don’t have obvious disabilities to present to onlookers to judge.
Child’s Room Refresh - Take Two!
As you may have seen in our earlier blog posts, Heidi Lentz and I enjoyed a wonderful visit with the Sutton family, winners of the In Our Arms Child’s Room Refresh contest. However, due to circumstances beyond our control, the Sutton family was unable to receive the benefit of this donation. We appreciate the Suttons for welcoming us into their home and allowing us to drop off the custom cookies and “Breathe” candle. We wish Vanessa and her family all the best! Looking forwar
Dear Me …
Dear Juli Anne, You don’t know it yet, but you will find peace in the middle of your storms .... Throughout my years as a mom, I would write letters to my younger self countless times in my head. But I could never put my thoughts down on paper. What would I say that would make sense, and truly be enough to undergird my younger self for this journey? My dad uses my first and middle names when he wants to talk to me about something important, but with a slight air of sarcasm or