Your caregiver voices have spoken!

Thank you for your swift and heartfelt responses to our Caregiver Survey! I’ve read your thoughts, suggestions and desires. Your clarity has given us a powerful roadmap forward.

Here are a few of your top requests:

• Connection and Community: Gathering with fellow caregivers over a shared meal or a cozy coffee meet-up to exchange stories, laughter, and support.

• Rest and Renewal: A self-care Spa Day or a complimentary night at a hotel to unwind, recharge, and feel truly seen.

  
  

So, how do we move forward to support you?

1. We’ve compiled your responses alongside national caregiving trends, and we’re leaning into the initiatives that best serve you in our local communities.

2. The Robert Henderson Legacy Fund at Morgan’s continues to grow. Morgan’s vision of inclusion will help guide us as we ensure that individuals with disabilities, as well as you, their caregivers, are seen, honored and supported.

3. We’re making space for you to be heard and included. Your call for respite and community has been received at In Our Arms.

I value your time, and we are committed to meet you with open hands and caring hearts.

“Turning Pain into Purpose” is not just a catchy phrase from me. It is a focused calling to reach you in practical and observable ways beyond the places we have met you in the past. Many of you know our family’s story of caring for our son, Robert, who lived for eighteen years with multiple medical complexities. We speak and act from our experiences as a caregiver family. You need the real, raw truths about this journey. I will not lie  —  this road is just hard work!

We will continue to put our advocacy “capes” on daily to support you. There is no gain for us other than seeing you succeed. Thank you for the privilege of allowing us into your lives.

We may walk differently on our caregiving journeys, but we will speak together and find purpose in the pain … and be better because of it.

One Voice at a Time

The Robert Henderson Legacy Fund at Morgan's

Empowering Caregivers, Honoring Lives

Robert Henderson, son of Juli and James “Chris” Henderson, faced a rare mitochondrial disease and CHD2 myoclonic encephalopathy with extraordinary courage during his eighteen years of life, enduring intractable seizures, progressive loss of motor function and comprehension, innumerable hospitalizations, and multiple operations. His journey was defined by love, laughter, and music, inspiring all who knew him.

To honor Robert and the caregivers who played a vital role in ensuring his life was filled with meaningful experiences, the Henderson family established this fund. Its mission is to support programs and initiatives that empower caregivers and celebrate individuals with disabilities, reflecting the inclusive vision of Morgan’s.

This fund is the first named memorial endowment at Morgan’s and serves as a powerful testament to the lasting impact of a life filled with love.

Listening Library: “Better Because Of It” (Danny Gokey)

https://youtu.be/EUS3qPGfnps?si=BAYWzQT7Zr-Occ14

Better Because Of It

Devastated, an understatement

It's not part of the plan

You're asking why He didn't stop it

If the whole world's in His hands

Suffocating in the waiting

And your faith is wearing down

But there's hope even though

You can't understand the pain of your road

He's in the future, He knows something you don't

One day, you'll see, you'll be on the other side of this

All done with it

Better because of it, because of it

Better because of it, because of it

Someone's gonna need your story to get them through the night

Someone's gonna see His glory, by the way, He won your fight

There's a breaking in the waiting

And the storm keeps bearing down

But there's hope even though, even though

You can't understand the pain of your road

He's in the future, He knows something you don't

One day, you'll see, you'll be on the other side of this

All done with it

Better because of it, because of it

Better because of it, oh

Everything that you think will break you

Are the things that He'll use to make you

So hold on longer, so hold on

Everything that you think will kill you

Are the things that He'll use to build you

So you'll be stronger, you'll be

You're better because of it, ayy

Suffocating in the waiting

And your faith is wearing down, mmm

Better because of it, because of it

Better because of it, because of it

Better because of it, oh

Ooh, oh yeah

He's making you stronger through it all

Making you stronger

Songwriters: Bernie Herms, Danny Gokey, Emily Lynn Weisband

Better Because of It lyrics © Sony, atv Cross Keys Publishing, Weistribe Publishing, Xeva Music, Works By Pure Note Songs, Better Than I Found It Publ., Avex Usa Hits, Better Than I Found It